Tuesday, March 15, 2011

PH sucks.

For the past month we've been living the dream here. The dream where pulmonary hypertension is ancient history and where bedtimes are not worked around medication schedules.

Today was a really big day and it totally snuck up on me. I wasn't really ready to take Ralph back to the cardiologist. Good thing he didn't particularly care.


He had a great time playing in the waiting room.


Then my camera ran out of batteries. :)


Then my heart got broken. Again.

Weaning Ralphie off his medication was a trial. I had a feeling that it was too good to be true. And though I have no expertise, and though I was very busy trying to keep Ralphie still, I know what to look for on the echo cardiogram screen. The trial is over. Ralph's pressures are up. The dream is deferred...for awhile anyway.

PH sucks.

5 comments:

ParkerMama said...

I whole heartedly agree.....PH sucks!

I'm sorry your heart was broken. I so totally know the feeling.

Tammy and Parker
www.prayingforparker.com

Stephanie @ Ralphcrew said...

Tammy, I KNOW that you know. Thanks.

Sherrie said...

I'm with both of you. So sorry..what a disapointment. I wish I had never heard of the nasty stuff.

Mel said...

So sorry Stephanie. Hang in there. Praying for you and Ralphie.

TherExtras said...

The meaning of those numbers for Ralphie (and Parker) makes my chest feel a little tight. :( Thank goodness for the medicine that helps them to continue to grow and heal.
Barbara