I've failed the 31 for 21 challenge. But that's ok with me.
You see, I have stayed up late for years to give this boy his medicine at the proper eight hour intervals. It would be easier, and earlier in the evening, if he didn't go to afternoon preschool. But, it is what it is.
Or, what it was...
Ralphie had a cardiology appointment last Friday. During his heart echo, I could see that his pulmonary pressures were as low as I had ever seen them. The doctor confirmed this to me later. Low is good. Got that?
I had the choice of letting Ralphie continue to grow out of his pulmonary hypertension medicine, or giving him another two month trial off of the medicine. If you remember, we tried this earlier in the year and were disappointed.
I chose the two month trial. I have no illusions. I'm well aware that this might not work, so my hopes are not high.
But, now I get to go to bed at the same time as normal people. Don't be surprise if this blog continues to suffer the loss of my prime late-night blog time. It's OK.
Beating PH and grinding it into the ground trumps late night blog time. Can I get an "AMEN!"?
2 comments:
AMEN!!! :-) I've missed a few days too...sometimes sleep is more important!
We are still doing the 8 hours. But we are weaning. The thought of just going to bed when I want to makes me smile but for now we are thankful for the meds....just not the sleep schedule :)
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